Monday, December 31, 2007

Happy New Year!!

Hello all,
I know it has been a while since my last post. A lot has happened so I will try to catch up a bit.
First of all, Kris Carr commented on my last post which is so cool! I have no idea how she came to read it, but that is pretty cool. I was pretty excited when I saw that.
The same day, after having a great walk in the sun and a great therapy session, I got the first letter that my health insurance is denying my claims. Let's just say the day felt like it came crashing down. They are trying to say I had a pre-existing condition. I mean the whole thing is pretty unbelievable. So I am going to have to appeal and fight this. Just what I want to do with my energy right?? How do these people sleep at night?

Anyway, then on Christmas day we drove out to Susan's at the Coast and had dinner at the Shilo overlooking the sunset at the Ocean. It was really great. The weather was totally bizarre so we were getting sun, snow, hail, rain. It was pretty cool. We then watched "It's a mad mad mad mad mad mad world" which is a great flick I had seen as a kid with my cousin Sasha, rented by my uncle Regie. He had great taste, and it was great to see it again. Craig, Susan's husband, has us watching great movies, as they are quite the movie buffs, to put it lightly. We also watched "bringing up baby" with Katherine Hepburn and Cary Grant, another great one.
So I woke up the next morning and exclaimed, "this is the first morning I haven't felt depressed!" How exciting. Then, the pain that had been growing in my thigh had moved down my leg and my calf was swollen. Something clicked, I called Dr. Malpass' office, and sure enough, they thought I had a blood clot. So, off to the emergency room back in Aberdeen.

I don't want to talk about it right now because I have been feeling good, but it was a really rough trip for me. They did an ultrasound and found a blood clot from my calf to my groin. Eww. Then they warn you that a piece could break off and give you a pulmonary embolism. Merry freakin Christmas! So I was admitted and put on blood thinners. It was just really tough to be back there especially since we were supposed to be on Vacation. My mood was pretty weepy throughout. My first night was pretty rough, but I felt my uncle Regie there with me. For those who don't know, he was born with a heart defect, endured multiple heart surgeries. Then, as if he hadn't seen enough, fell off a ladder, hitting his head, and needing a couple brain surgeries. He was a person who defeated the odds for many years, he wasn't supposed to grow up or old and we had him until November '06. He was 54. Throughout his hospitalizations he kept is sense of humor. Thinking of him helped bring me a lot of comfort.

I must also say, the people at Grey's Harbor Hospital were really amazing. I am bawling now thinking about them. There was only a few private rooms and they gave me one and allowed Ben to sleep in the other hospital bed. Joanie in short stay told me stories of her sister-in-law who beat cancer and had an infectious laugh. Peggy, one of my nurses, saw me breaking down and brought me a beautiful Angel from the gift shop. When I was discharged she said, "If you didn't have a mom I would adopt you, you have been such a great patient." We were both in tears. It is just beautiful for me to see the human interactions that can happen out of this. At the end of the day we are all just living our lives, and coming into contact with one another. You might think getting this disease would change my world view, that he whole world sucks and all. I mean, yes, THIS sucks, but I have come to experience compassion that I have never seen before.

Next, on the 28th, we sprung me outta that joint. They would've kept me for a few more days, until my blood was at the right level (2-3), in order to give me the shots I needed, but since Ben was an expert at giving me shots in the belly from fertility treatment, they sent me home with shots and pills in hand.
That night I was still pretty weepy. I was walking with a cane, stuck in bed, my leg still hurting. I realize now that when I'm not feeling good, everything just feels dreadful. Makes sense right!!! It is so difficult remembering that it is going to be better, usually in just a few days. It just feels like you are going to feel like that forever.

So the last few days have been much better. My anxiety toned down a lot and I have really been able to have a good time with Susan. Ben has had a lot of work to do, so we went to the beach yesterday, we were chasing the sun. It was really windy then started hailing on Susan and Skylar (I was in the car). But it was great to hear and see the waves. They were pretty rough.
Susan and I also got all my medical stuff and insurance stuff organized and put in binders...a five hour job! What a help! We have watched more good movies, napped, and relaxed. Last night I was a little short of breath so I called the hospital. The on call doc said I should go to the fire station to make sure my stats were okay. We were met there by four paramedics/firemen. The main paramedic took my stats and I was fine. He was really great too, I was quite impressed. I have started to tell people, "I have cancer," and it is really quite odd. He was shocked, stating he couldn't believe it when I said it. I think I still feel the same as he does. I got home and took my pain meds and felt better, I realized that I have been having some breakthrough pain, so I am just trying to manage that now.

This morning we headed back to Aberdeen for a blood draw to check my blood level. 4.6. oops, well over the therapeutic level. I just stop all the blood thinners for a few days and try to get it in the right zone. I have not talked to my oncologist yet (he's on vacation until Wednesday), so I don't know what all of this means for my upcoming chemo (on Wednesday). I am starting to get a little nervous about it. I hope the oxaliplatin goes in okay and I don't have more of an allergic reaction. I know the drug is working and I want to continue. I know it's working because the mass in my neck has gone down. I am just elated about this. I am hoping, therefore, that it is working in the liver too.

So as I sit here staring 2008 in the face, I feel a multitude of emotions. This is the 14th New Year Ben and I have spent together. (Sarah, remember Chicago 1995 when our car broke down and we all had to drive back in a Camry or something--there were 9 of us. Ah, those were the days). I am so grateful for all of my friends and family, I wept over my spaghetti tonight, and am again. My heart feels so full of love. There is also a deep sense of sadness and trepidation for the journey ahead. I am frightened and question my strength. It often feels so big that I don't know where to put it or how to fit it into my field of vision. Then there is a sense of hope and faith that I will win this fight and be a better person and therapist.
One of Susan's clients said the secret to life was, "having something to do, someone to love, and something to look forward to." This really resonated with me. I have more love than I can express, so now I just have to work on the other two.

Kris Carr says to make a five year plan. Dare to dream right? This has been difficult for me for some reason. I am going to start tonight and have it be a work in progress, seems like a time for fresh starts right?

2008-fight fight fight, win win win. My full time job is getting through treatments and beating this thing. Full Remission before 2009.
Get back to work seeing a few clients. Keeping my practice going, giving me things to think about, etc.
Start yoga again, for spiritual, physical and mental health.
Continue with therapy. Absolutely loving it!
Find something meaningful combining cancer and therapy... needs some refinement, would love to get in contact Kris Carr.
Get back to my psychotherapy cooperative meetings. Although I probably won't be able to see clients for awhile on a volunteer basis, they are such a group of support and inspiration.

2009-Be in remission. Start working toward getting "really healthy." Macrobiotic diet, exercise, voodoo, kung fu, whatever the hell I need to do to STAY in remission. (I CANNOT believe Malpass' crap about me staying in remission for only a few months.)
Start re-growing my practice, taking new clients, rocking out with my newfound "cancer wisdom."
Start taking coop clients again too.
Adding the yoga component to my practice (planned to do that this year).
Keep up with whatever I come up with cancer+therapy mix.
Wait on Ben hand and foot for all that caregiving (wait, I probably shouldn't put that in writing), and do anything for my family and friends!

2010-This one is difficult because it is not up to me, but let's put it in the year nonetheless. HAVE BABY! Well, that is more up to my beautiful an generous sister Amber Rose an her (husband at that time right?) 24 little embryos are waiting to be picked from the bunch. This would make us so unbelievably happy, I never knew I wanted a child so badly. Ben and I can't wait to see how we look together in a new, perfect little one.
TRAVEL! Let's see, Vietnam? Guatamala,? Peru? Ahh, the choices...
Keep working on my practice of course.
Oh, we have to figure out whether to sell our house or refinance, (those adjustable mortgages, you know). I would like to sell and possibly move out of town a little bit, I have a real call toward nature.

2011-Being mommy and all the messy, crazy, beautiful things that come with it.
Still working on practice.
Let's dream right?... I always said I wanted to write a book. This might be the year to give her a start... subject totally unknown. I'm sure something with existential undertones of course.

2012-My beautiful Ben turns 40. I have known him since he was 21. Celebrate like hell! (You know I like my surprises, so I better keep those to myself, oh, how this will keep me thinking!) Let's just say TRAVEL. Also, will be our 15 year anniversary of being together. That should be a good celebration too. We'll have been through a hellofalot by that point.
Remission inching up toward that magical 5 year mark. Feeling healthy, wealthy, and wise.
I think with all the other things I have started, I will be pretty busy!!

Also remember while doing all of this, I will be spending time with my family and friends. After all, that is what this life is all about, sharing it with others. It is a big scary, weird, beautiful, confusing, hilarious world out there, if it weren't for each other things wouldn't make much sense, or be much fun.

Alright. I'm tired now. It's going on 9, a few hours before 08. We are staying in and going to give a little cheers to one another. I couldn't wish to be anywhere else. (Skylar is lying on the couch next to me starting at me, what a beauty).
I really hope all of you who read this ring in the new year in a wonderful way. Have a few beers for me!

Oh yeah, the thing I need to work on in the new year is live in the present, especially when feeling good. ie. I just took a sip of the most wonderful iced tea after drinking nothing but water for days. What a sensation! Also need to work on how to get through the treatments, remembering the present isn't going to always be feel bad...

Lots of love,
Angel V.

8 comments:

Anonymous said...

Happy New Year!! I read Ben's blog and about fell over when he also mentioned that crowded trip back from Chicago!!! I think about that trip all the time!! I don't think we were in a Camry - I always remembered us being in a two-door red Chevy Cavalier, or maybe it was Michelle McGloan's (sp???? AKA girl that went on Maury for a makeover) Honda Civic? Either way, the car was tiny and we were crazy!!!! Is that when I first spotted Big Red?! Wonder whatever happened to him, Mr. Tom McLeod! He was so hot, but a total jerk! :)

This must be the year for everyone to take it easy! I am sitting here in bed at 11:15 PM on New Year's Eve, with Riley peacefully sleeping next to me. I agree with what Ben said on his blog: It IS a totally different scene this year and it DOES feel good to stay in instead of fighting the crowds and spending too much money for cabs and cover charges.

I'm feeling a lot of good changes to come in 2008, and I love your five year plan! I want to start yoga this year and cleanse my life of toxic thoughts and feelings that took over during my bad relationship. It makes me smile to think of all the good things there are to come, but like you, I just have to get over this hurdle of pain first. The pain I am feeling is completely different than yours, but I hope you know that no matter what struggles we face I will always be here for support and love!! One of the best surprises of the year was reconnecting with you and Ben, and your friendship always brings a huge smile to my face. Thank You!!!! There will be a time when you and I can share a nice cold Rolling Rock together (not that I drink that anymore, but for memory's sake!!) but until then I will say 'Cheers' with my LaCroix water and say a little New Year's prayer for you! Love you lots...

Sarah

(Oh, and your movie should be on its way!)

Amy said...

It is Darren's 21st birthday today. We will take him out for a birthday bloody mary this morning. In MN, you can't drink until 9 a.m. on your birthday (to avoid the power hour). We will raise our glass to you and Ben, too. You met Ben when he was 21...perhaps my son will meet his Angel this year. Wouldn't that be nice? I love your 5 year plan! I will make one too. xoxoxo
Amy Huber

Unknown said...

Hey Girly Girl! I miss you so much, and thank you so very much for writting this blog! I am glad you feel it is helful to you, but have to say - this is so wonderful to be able to log in and find out how your day, or week has been..

Happy New Year, Angel! It is a new, fresh and healing year. In numerology 2+0+0+8 = 10. The sum of 10 is 1 - this year indeed is the first year of your 5 year plan. I think it is a great plan that you got - with one suggestion though - in 2010, can we please! please! go to Russia instead of Vietnam or Guatemala ;)? By then our crazy concoction, named "summer house" will be in better shape and ready to invite house guests - and we can walk to Volga River during the day and sit near the fire and munch on my mother's very organic apples at night! Ask Ben to get on MySpace - I got all the pictures lined up there - you will love it! Just like we planned - you, Susan, me, Ben, Craig and my mom, with her non-stop " i gotta feed the kids" frenzy! Gotta give that old woman something to do =)!

Now, about one of the questions you posted in a previous blog - getting through chemo.. There is one thing that popped in my mind that you are not doing yet, and I thought I'd run it by you and see what you think. My father absolutely loved when mom and I did Reiki. Not just on chemo days - but we did it every day for him. Here is what it is:
http://www.reiki.org/FAQ/WhatIsReiki.html.

This is not a massage, not manual therapy - I just put my hands on specific points of your body and act as a sort of "conductor" of the "life force energy". The whole thing lasts about 20 minutes to cover all the areas, but it can be longer or shorter - depending how it feels for a person who is receiving it.

I got Reiki training (or as it is called "attunment") back in 1997, and since I have completed the course - we have been doing it for my father and he absolutely loved it. Heck, I love it too, but I am too lazy to do it for myself.

My dad said that it was very relaxing, and, indeed, he was napping during the "laying on hands" almost every time.

Think we could try it?

I am hoping to come see you soon, girl. And I got something for you. Remember when all shit hit the fan in my life - marriage, health, car crash.. Susan brought me a rock from her trip to New Mexico (I think). And as silly as your mental picture is going to be now - I used to take that rock, hug it, curling around it on the couch under a blanket, close my eyes and think of all the good time that I had with people who loved me and I loved them too. And fear was leaving my thoughts, the rock would get warm from my warmth - and radiate it back to me, but stronger, with reassurance. And I always felt you two behind me, covering my back in those moments. And then I could get up and keep on pushing, and fighting, and moving on!

I think our collective strength. wisdom and support are in this rock, and I would like to pass it on to you for now.

I wonder if you remember it:
here is the image link:
http://i184.photobucket.com/albums/x228/capellius/IMG_1582.jpg

Both you and Susan are the first people that I met in the US who made my life here feel "normal". You were the first three people (I include Chuck Ellis here too) who actually got me - I never had to pick words of how to say things to you - you just knew what I was talking about - even when I probably wasn't all that coherent at times. And I will never thank you enough for this!

Just know that even when I am not in the same room with you - I am there, with the army of people who love you, and got your back! I love you, girly, very very much! And in 2010 let's please please go to Russia!!!

Hug you and Ben many many times! I will see you soon!

Subliminal_Kid said...

Hi Angel, Happy New Year! I couldn't believe those fuckers from your health insurance company... In my opinion they have to disclaim "pre-existing condotions" BEFORE signing an insurance and not NOW... That's the way it works in germany... Well i love reading your blog and i really loved to see you new years eve photo---
See ya soon, David

Anonymous said...

Happy New Year yo from Greenwood Ave! Ben will turn 40? Don't you have to stop getting haircuts like you're 17 first?

Love the blog. I continue to be amazed about how you spirit continues to be as strong if not stronger then ever. I went to church for xmas eve (as I couldn't get out of it) and it actually wasn't too bad. I just kind of zoned out, but in a good way, not in the 'why the fuck do elements need a periodic table?' kind of way.

Happy New Year and Many More, fo shizzle!

michael

Sarah B. said...

Hey sweetie! I just wanted to send my love and let you know that I am with you and Ben all the way. Art and I are thinking of you and are wishing you nothing but the best. When you are up to it we would love to see you, but we don't want to burden you! Just know that our love and our thoughts are with you. You are an INCREDIBLE person!!! And so very strong! I want you to know that you are an inspiration to me and I love your spirit and strength! Hang in there you sexy, strong, crazy cancer babe! And PLEASE let us know if there is anytihng we can do!

Love you!
The Bromages

Anonymous said...

So I know it's not New Year's but since this is your most recent post, I'll comment here:) Can't wait to see you tomorrow night for a quick visit when Meals on Wheels makes it's not-at-all-regular delivery:) Oh yeah, I might bring that guy who hasn't gotten a haircut in seven months, too. See you soon!!! - Lindsey

Erik said...

(For 2010 or whenever you happen to get to it) I am going to toss my input out there (can you toss INput OUT?) and say go to Peru. I plan to go back there someday and take Chris-Anne with me. Hit Machu Picchu in the early AM when the busses are first heading up and you will miss the tourist rush and you will be able to look around and get some great pics without throngs of people blocking the view (which is spectacular). I haven't put anything new up in a while, but hit-up my Flickr page to see my pics of Peru and get inspired. And then go.

I miss you and Ben and you're both in my thoughts.